4 h. ago 'I'm treated like a security risk at airports because of my rare condition'

Rebecca Legon was born with a rare condition called PFFD, which stopped her leg from forming correctly during early fetal development. She has spoken about the issues she has encountered while travelling

Events

12 h. ago Schoolgirl struggling with mental health diagnosed with rare physical condition

Ilia Carney, 10, began experiencing sudden mood swings that left her unable to attend school or even step into her dance classes - and was thought to be struggling with mental health problems.

Science

38 h. ago I have a rare gynaecological condition and worried I'd never be able to have kids now I don't want them as I earn £150k a month doing OnlyFans

Uterus didelphys affects just 0.3% of women worldwide. Annie's form of the condition means she has a completely duplicated reproductive system - two vaginas, two cervixes and two uteruses.

Economics

3 d. ago Teenager woke up paralysed from the chest down and was told she may never walk again

Jessie-Lou Harvie, 14, was told she may never walk again after she suddenly became 'completely paralysed from the chest down' and was diagnosed with an extremely rare condition

Politics

4 d. ago Scots teen woke up paralysed after 'one in a million' rare spine condition

Nicola Harvie's daughter, Jessie-Lou, 14, from Blantyre, was diagnosed with transverse myelitis, a rare spinal cord condition.

Politics

5 d. ago Nicholas Lyndhurst honours late son Archie's memory by relaunching his streetwear fashion range

Archie died in his sleep after suffering an intracerebral haemorrhage caused by acute lymphoblastic lymphoma - an incredibly rare condition which kills around 800 people a year.

Politics

7 d. ago Vanuatu delays $330M Australia security pact over Chinese funding concerns

Vanuatu is not ready to sign a security and economic treaty with Australia due to concerns about potential restrictions on securing infrastructure funding from other countries

Economics

1 week ago 10 airports most at risk of queue chaos from October as EU's entry

An aviation expert says there are several hubs that could face problems from next month

Events

1 week ago Scotland first part of the UK to screen babies for ‘devastating’ rare condition

From early 2026 it is expected babies born in Scotland will be routinely tested for Spinal Muscular Atrophy.

Politics

1 week ago Family of terminally ill girl with rare genetic condition in desperate plea for specially adapted room

Little Eireann MacFarlane is one of just six people born with a genetic abnormality which requires 24 hour care.

Politics

2 w. ago 'I knew time was running out to see my family's faces and I needed to make memories while I still could'

Dave Steele was diagnosed with a rare genetic condition which has no treatment, no cure. His world fell apart, until something incredible happened

Politics

2 w. ago Experts warn Trump is showing one rare sign of brain condition and 'it's getting worse'

Clinical psychologists Dr John Gartner and Dr Harry Segal have raised concerns about Donald Trump's psychomotor abilities as they claim the 79-year-old is demonstrating clear indicators of dementia

Events

3 w. ago Hundreds with rare conditions to benefit from new blood matching test

The move will allow donor blood to be matched to these patients more closely, to reduce the risk of severe reactions

Events

3 w. ago Blood matching test to be offered to patients with rare conditions

About 300 people will be eligible for the test, which uses genetics to get detailed blood group information.

Events