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Leben mit einer seltenen Krankheit: Allein unter Millionen – „Cystinose ist ein innerer Kampf“

Markus Küppers leidet an der Speicherkrankheit Cystinose. Nur 2000 Menschen auf der Welt sind daran erkrankt. Der Alltag hat für ihn seine Tücken – warum es trotzdem keinen Grund gibt, den Mut zu verlieren.



Markus Küppers, one of approximately 2000 people worldwide with the rare genetic storage disease cystinosis, discusses living with the condition, which primarily affects the kidneys and eyes, and the challenges he faces daily. Cystinosis is caused by a defective gene inherited from both parents.

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