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Leben mit einer seltenen Krankheit: Allein unter Millionen – „Cystinose ist ein innerer Kampf“

Markus Küppers, one of approximately 2000 people worldwide with the rare genetic storage disease cystinosis, discusses living with the condition, which primarily affects the kidneys and eyes, and the challenges he faces daily. Cystinosis is caused by a defective gene inherited from both parents.
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