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„Jadan ja nije uteha, to je otrov“: Oko pola miliona građana Srbije živi sa nekom retkom bolešću

U svetu postoji preko 6.000 retkih bolesti od kojih boluje čak pet odsto svetske populacije. Procenjuje se da u Srbiji sa nekom retkom bolešću živi čak pola miliona građana. U 72 odsto slučajeva bolest je genetskog porekla i ispoljava se već u ranom životnom dobu, dok za samo pet odsto ovih bolesti postoji adekvatna terapija.


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