8 h. ago My rare disease was getting closer to a cure. RFK Jr could undermine that | Jameson Rich

The Trump administration’s funding cuts to the NIH could destroy a wave of approaching research breakthroughsSince Robert F Kennedy Jr assumed control of the US health department in February, with a mandate to “[lower] chronic disease rates and [end] childhood chronic disease”, he has moved quickly to remake the US’s federal health infrastructure. But the Trump administration’s actions on medical research are already threatening that goal – and could end medical progress in this country for good.Kennedy’s office oversees the National Institutes of Health, the control center of disease research in the United States. Kennedy’s agency has killed almost 800 active projects, according to Nature, affecting medical research into HIV/Aids, diabetes, women’s health, heart disease, cancer, Alzheimer’s and more. The administration wants to cut the NIH’s budget up to 40% while consolidating its 27 agencies – separated by disease area – into just eight. Elon Musk’s Doge has been reviewing previo...

Politics

5 d. ago Boy, 4, given 'death sentence' from rare disease receives incredible breakthrough

Eisa Hussain was given a devastating diagnosis after his dad says he "didn't seem right"

Events

6 d. ago What is Hantavirus? Disease explained as autopsy confirms Gene Hackman's wife's cause of death

The actor's wife, Betsy Arakawa, died of the rare disease

Events

7 d. ago NHS leaving some patients with rare diseases to ‘fall through the cracks’, damning report finds

People with certain diseases are being left behind, report finds

Science

7 d. ago NHS letting some patients ‘fall through the cracks’ as government urged to do more

People with certain diseases are being left behind, report finds

Politics

8 d. ago Final autopsy results on Gene Hackman and his wife, Betsy Arakawa, reveal complex health issues

Report confirms that Arakawa died of hantavirus and her husband, who had heart problems and Alzeimer’s disease, may not have realised she had diedTwo months after the actor Gene Hackman and his wife, Betsy Arakawa, were found dead in their home in Santa Fe, final autopsy results on the couple have been released.These shed further light on the state of health of Hackman, 95, at the time when his and his wife’s bodies, along with that of one of their dogs, were found by a maintenance worker on 26 February. It is believed that Hackman died around a week after his wife, whose cause of death was hantavirus pulmonary syndrome, a rare rodent-borne disease. Continue reading...

Politics

8 d. ago Growing concern as California hotel worker dies from same rare rodent disease that killed Gene Hackman's wife

An employee of a well-known California ski resort has died from the same 'tragic and alarming' rodent-caused illness as Gene Hackman's wife Betsy Arakawa.

Events

9 d. ago Rare diseases often go undiagnosed or untreated in parts of Africa. A project seeks to change that

Millions of people around the world live with rare diseases, most of them caused by a misstep in their genes

Politics

1 week ago Genetic medicine can leave people with rare mutations behind. But there's new hope

People with diseases caused by rare mutations have fewer options and poorer prospects than other patients despite rapid recent advancements in the growing field of genetic science

Politics

1 week ago Letter from the Pope gave Renfrew man 'hope' to fight rare genetic brain disease

Michael Conway paid tribute as he revealed a special connection with the late Pope Francis which gave him hope to fight Adrenoleukodystrophy (ALD).

Politics

1 week ago Congolese drug dealer wins legal fight to remain in UK after he is released from prison because his son has rare blood disease

The British asylum court dismissed the Home Office's attempts to deport the convicted criminal, ruling it would be 'unduly harsh' on his son, who has a rare blood disease.

Events

1 week ago America's 'Gateway City' is at center of a cancer crisis with 'insidious' roots

An 'insidious' nuclear disaster dating back to World War II may have fueled an explosion of cancers and other rare, chronic diseases in a major Midwestern 'gateway' city.

Events

2 w. ago I contracted a rare disease that's been linked to the Covid vaccine and lost my ability to speak

Vanessa Abraham, a 45-year-old mother, had spent over 15 years helping children overcome speech obstacles and teaching them how to talk when one day, she lost her own voice

Politics

2 w. ago New details of Gene Hackman and Betsy Arakawa’s final days released

Arakawa was shown to have been researching medical conditions related to Covid-19 and flu and police bodycam footage from inside the couple’s home releasedAuthorities on Tuesday released a lengthy investigation report detailing some of the last emails, phone calls and internet searches by Gene Hackman’s wife Betsy Arakawa in the days before her death, indicating that she was scouring for information on flu-like symptoms and breathing techniques.Arakawa died in February of hantavirus pulmonary syndrome – a rare, rodent-borne disease that can led to a range of symptoms that include flu-like illness, headaches, dizziness and severe respiratory distress, investigators said. Hackman is believed to have died about a week later of heart disease with complications from Alzheimer’s disease. Continue reading...

Politics

2 w. ago Hantavirus UK guidance issued as pet owners all ask same question

Gene Hackman's wife Betsy Arakawa's died due to a respiratory illness linked to hantavirus - a rare disease carried by infected rodents. Here's what you need to know about the virus

Politics

2 w. ago Gene Hackman's wife Betsy's telling internet searches in days before her painful death

Arakawa died in February days before Hackman of hantavirus pulmonary syndrome - a rare, rodent-borne disease.

Events

2 w. ago Gene Hackman's wife Betsy's internet search history days before death revealed

Gene Hackman's wife, Betsy Arakawa, searched the internet for information on flu-like symptoms just days before she died from a rare rodent-borne disease at her New Mexico home

Events

3 w. ago Two dead, another infected, as rare brain disease reported in one Oregon county

Three cases of Creutzfeldt-Jakob Disease, which causes sponge-like holes to develop in the brain, have been found in Hood River County

Events

4 w. ago Cannibal rats 'the size of cats' could cause disease outbreak in UK city, expert warns

Experts have warned ongoing bin collection strikes – which has brought 'cat sized rats' to roam the streets of a UK city – could bring about the outbreak of a rare bacterial disease

Events