34 h. ago U.S. Batten disease experts who lobbied B.C. to reinstate drug in Charleigh Pollock case had relationships with drug company

The doctors have consulted for, been paid by, or received grants from California-based BioMarin Pharmaceutical Inc. which manufactures Brineura, used to treat Batten disease

Economics

6 d. ago Titan disaster: Federal Fisheries Department was part of previous OceanGate mission

HALIFAX — The federal Fisheries Department is shedding new light on its relationship with OceanGate, the American company behind the deepsea Titan submersible that imploded south of Newfoundland in 2023, killing all five people aboard. The department confirmed Thursday that in the summer of 2021, a staff member boarded a vessel “associated with OceanGate” to […]

Society

7 d. ago Former B.C. health ministers weigh in on expensive drugs for rare diseases

Brineura, the drug used to treat 10-year-old Charleigh Pollock's neurodegenerative Batten disease, costs more than $800,000 a year.

Politics

1 week ago Knight Therapeutics and Incyte Amend Supply and Distribution Agreement to Add Retifanlimab and Axatilimab in Latin America

MONTREAL, Aug. 04, 2025 (GLOBE NEWSWIRE) — Knight Therapeutics Inc., (TSX: GUD) (“Knight”) a pan-American (ex-USA) specialty pharmaceutical company, announced today that it has expanded its existing relationship and amended its agreement with Incyte Biosciences International Sàrl, the Swiss-based affiliate of Incyte (NASDAQ:INCY), for the exclusive rights to distribute retifanlimab (sold as ZYNYZ® in the […]

Sport

3 w. ago Charleigh’s story: Mom says reinstating drug funding allows daughter to have dignity

After weeks of fighting for the B.C. government to reinstate drug funding for Charleigh Pollock, Health Minister Josie Osborne announced Thursday that funding would be reinstated.

Economics

4 w. ago B.C. NDP admits Charleigh Pollock is the only kid in Canada to be denied funding for rare disease

Vaughn Palmer: Health minister's claim of fair treatment as hollow as her insistence that she and her colleagues hold young girl and her family 'in our hearts'

Society